My Special Place

My Special Place
Fort Flagler

Saturday, October 16, 2010

Jordans sum of her heart surgery!

So June 1 2008 after the great nurse at good Sam saw her heart rate was a little high and wanted to re check it once more, which showed a rapid heart rate. So we have him to thank for her today. After seeing a dr in tacome with out any good results or answers we went to childrens and with in days they said she had H factor pylori, AET (Artial Ectopic Tachycardia). So it explained alot of her weight issues and why she couldn't keep up with her soccer sisters. So after ALOT of Meds the H factor Pylori was gone and so in DEC 08 they attempted aElectrophysiology study and Ablation, in which was UN successful, So we waited and as things got worse for her they wanted to try again, so on June 2 09, we went back in and had the surgery again, they were able to see that there was also an Accessory Pathway, along with the AET. So we were told there was a 3 percent chance of it returning. the Next 3 months she had all the energy back. but around September I noticed a drop in her running and energy, I asked her and she said Just because I'm not running that fast doesn't mean my hearts acting up. But come to find out she was just scared because she knew something was wrong but what! After an attack at school, they called me and we went back in so over the last 6 months we have done all those test again and sure enough after the stress test he said they have to go back into surgery, Not sure if its the same as before or something else. So we will be going in for Surgery on June 16th, the surgery will last 6 to 8 hours depending on what they locate.

So Jordan's third Surgery was no so great, they were able to tell us that the Accessory pathway tachycardia

that they located and  did a successful ablation, has stayed closed and didn't re-open, but on the other side of things are the Atrial Ectopic Tachycardia was still there but the location is in the upper chamber but right against the lower chamber So they tried for 8 hours and also gave her straight Liquid adrenal for 6 hours, they were able to try but they didn't get it. So we ended up spending the Night at Children's Hospital. We didn't even get to see her until 10 pm because all the Adrenal they gave her made her sick and gave her a massive Migraine, also they were not sure if she would be okay Thur the night. So My mom had to work in the morning, and Linda and her were both willing to stay with us, but we sent mom home so she could rest, Linda ended up staying and staying in the room with Jordan, because I cant handle the door shut and being trapped in. So Carly and I slept up in the the Family resource center. So we have attended multiple Dr appointments and as things stand know shes a medical mystery, they would need three cases to make it a medical study. That's due to the fact that there are no records ever that show someone who can have two rhythm. So we will keep up out fight and carry on.

I will say that it was harder for Us the first and second time, but i think this time is more scary for her and us with them not knowing what it is and the fear from her is pretty hard. Shes very scared but the Dr did tell her no needles when shes awake... So that helps her alittle...



SO PLEASE SEND HER WORDS ON ENCOURAGEMENT AND PRAYERS!! SHE STILL HAS ALONG FIGHT AND SHE NEEDS SUPPORT FROM ALL HER FAMILY,FRIENDS, SOCCER SISTERS, SOCCER FAMILY, AND ANYONE WHO IS INVOLVED IN HER LIFE!!!!





THANKS

MARY



After the Surgery in June!



Some of her closes friends ever

Sounders Opener March 25 2010


best friends

They are the true meaning of Forever Friends

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